What Would You Give To End ALS? Join This Call-To-Action

What would you give to end ALS? I am honored to partner with the ALS Therapy Development Institute (ALS TDI), a non-profit organization committed to finding a treatment and cure for ALS. Together, with Linqia, we have united to raise awareness and funds in an initiative called #WhatWouldYouGive.

What Would You Give To End ALS?

What would you give to end ALS? ALS is not incurable, it's just underfunded. #WhatWouldYouGive and #EndALS

What Is ALS?

First, let’s start with defining ALS, Amyotrophic Lateral Sclerosis. You may also know it as Lou Gehrig’s Disease, Charcot’s disease, and motor neuron disease (MND). Every 90-minutes someone is diagnosed with this life-ending disease. It is a progressive neurodegenerative disorder that attacks certain cells in the brain and spinal cord needed to keep muscles moving.

Throughout the disease, a diagnosed individual will experience progressively weaker muscles, which will begin to stiffen over time. Breathing will become progressively more difficult too. Eventually, they will become wheelchair bound and, if chosen, invasive ventilation to keep breathing.

 

Diagnosis of ALS

A series of clinical procedures must be conducted to rule out neurological conditions whose symptoms closely resemble the disease. In the US, the diagnosis can take about 12 to 14 months. However, researchers are hopeful that they will be able to expedite this process.

Additional tests to differentiate ALS from other neurological disease include:

  • Electromyography (EMG) and nerve conduction studies (NCS)
  • Muscle Biopsy
  • Magnetic Resonance Imaging (MRI)
  • Genetic tests – However, most cases of ALS are sporadic, with no genetic history.

Treatment of ALS

On average, most people with ALS only live an additional 2 – 5 years after experiencing the first symptoms of the disease. Only about 10% of those diagnosed with ALS will survive an additional 10 years.

Currently, there is no cure for ALS. However, scientists are working to develop therapies for this disease. Presently, there are only two FDA treatments available in the US. Available threatments include riluzole (marketed as Rilutek), and edaravone (marketed as Radicava). Unfortunately, there is a significant amount of unmet funding that could really help advance a cure for ALS.

What would you give to end ALS? ALS is not incurable, it's just underfunded. #WhatWouldYouGive and #EndALS

 

AT-1501

AT-1501, a treatment developed by the ALS ATI, an antibody therapeutic. It is showing very promising signs with stopping the blockage of specific immune cell activation and protects nerves against the progression of ALS and Alzheimer’s Disease. However, at this point, AT-1501 will not make it to the clinic without immediate philanthropic support. It is literally sitting in a freezer until they can raise more funds.

 

Call-To-Action

This is where we can all rally together to help this cause. We can donate financially, as well as raise awareness to this disease on social media channels. Join one of the challenges above to raise awareness, or attend an event. Our support, can have a profound impact on ALS research and drug development at the ALS Therapy Development Institute.

Let’s all work together to #EndALS!!

Here are other causes I’ve had the opportunity to promote.

 


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About the Author

I am a work from home mom who dearly loves her 14-year-old daughter, 9-year-old boy/girl twins, and husband. I love my life, and feel very blessed by what God has provided for me.

I have had a true passion for Stampin’ Up! ever since I was introduced to this company in 2000. I hope to share that passion with you. I also enjoy topics on parenting and home organization. ❤

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